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Heidi, a woman living with MS with long brown hair and a floral shirt, stands outside talking with and hugging a friend.
Heidi (Left)
Diagnosed in 2009

Disclosure

Telling People That You Have Multiple Sclerosis

Who To Tell About Your MS and When

  • You’ll want to disclose first to those closest to you — those who know you well enough to know when something is wrong anyway. This is the best way to rally the support you need to begin the coping process.

  • There’s no need to tell everyone at once. Start with the people with whom you feel most comfortable. With time, you can decide how much you want to share and with whom.

  • Disclosing your MS at work can have a big impact on your:
    • Job security
    • Work options
    • Career path
    Before sharing this information, learn about your rights under the Americans With Disabilities Act (ADA). Think through the pros and cons of sharing this personal information." c-nmssatomrichtext_nmssatomrichtext-host="">
    Disclosing your MS at work can have a big impact on your:
    • Job security
    • Work options
    • Career path
    Before sharing this information, learn about your rights under the Americans With Disabilities Act (ADA). Think through the pros and cons of sharing this personal information.

  • How soon to tell, how much to tell and what to expect are common concerns for anyone who is actively dating. While there’s no need to tell all on a first date, secrets don’t lay a very good base for a lasting relationship. Consider sharing at the point that you would like to know important information about the other person.

Questions To Ask Yourself

  • Is it to:
    • Share personal information with an important person in your life?
    • Explain recent physical or emotional changes?
    • Rally help and support?

    • What MS is?
    • How it affects you?
    • How hard it is to predict changes in your symptoms?
    • What you’re doing to treat it?
    • That it’s not contagious?
    • That it’s not fatal?
    • How it’s different from other diagnoses?

    • In a face-to-face talk?
    • With a pamphlet that the person can take and read?
    • By reading a book about MS together?
    • By watching an online program together?
    • By going to an educational event together?

Prepare for Others’ Reactions

After You Have Disclosed

More Help Disclosing Your MS