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Online Surveys and Research Studies

Overview

Types of Surveys and Studies We Post

Studies for Understanding and Treating MS

  • https://redcap.partners.org/redcap/surveys/?s=W7K9DPTJKRC7DN4HIf you have questions or would like to learn more, please contact the team at: neuroinflam_survey@massgeneralbrigham.org" c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at Massachusetts General Hospital are inviting people living with neuroinflammatory conditions—like Multiple Sclerosis, NMOSD, MOGAD, Optic Neuritis, or Transverse Myelitis (TM) - to take part in a short survey about headaches. They are conducting this survey to better understand how headaches affect people living with neuroinflammatory conditions, and whether they are a part of these conditions so that we can improve patient care and treatments. You are invited to participate regardless of whether you experience headaches! The survey should take approximately 10 minutes.If you’d like to participate, please click the link below:https://redcap.partners.org/redcap/surveys/?s=W7K9DPTJKRC7DN4HIf you have questions or would like to learn more, please contact the team at: neuroinflam_survey@massgeneralbrigham.org

  • Click here to participateIf you have any questions, please feel free to reach out to Emily at patients@adeptfield.com" c-nmssatomrichtext_nmssatomrichtext-host="">
    Adept Field Solutions are looking to speak with adults who have been diagnosed with Relapsing-Remitting Multiple Sclerosis (RRMS). Participants will be asked to complete some short screening questions to confirm eligibility. If eligible, we will then invite you take part in a 15 minute online survey, followed by a 60 minute online interview.The study will ask participants to discuss their lived experience, treatment journey, and the evolving needs of people diagnosed with RRMS. Participants will receive a thank you payment for their time and opinions.Please rest-assured that there will be no attempt to sell or promote anything to you during this conversation and that your details will be kept confidential at all times.Click here to participateIf you have any questions, please feel free to reach out to Emily at patients@adeptfield.com

  • Click here to participateIf you have any questions, please feel free to reach out to Emily at patients@adeptfield.com" c-nmssatomrichtext_nmssatomrichtext-host="">
    Adept Field Solutions are looking to speak with adults who have been diagnosed with Primary Progressive Multiple Sclerosis (PPMS). Participants will be asked to complete some short screening questions to confirm eligibility. If eligible, we will then invite you take part in a 15 minute online survey, followed by a 60 minute online interview.The study will ask participants to discuss their lived experience, treatment journey, and the evolving needs of people diagnosed with PPMS. Participants will receive a thank you payment for their time and opinions.Please rest-assured that there will be no attempt to sell or promote anything to you during this conversation and that your details will be kept confidential at all times.Click here to participateIf you have any questions, please feel free to reach out to Emily at patients@adeptfield.com

  • here or visit our website CircaMS websiteIf you have questions reach out to circams@ghasemloulab.ca" c-nmssatomrichtext_nmssatomrichtext-host="">
    Rationale: Our findings revealed that circadian rhythms impact pain, neuroinflammation, and certain psychosocial factors (e.g., pain experience, mood, fatigue) in people with chronic pain and behavioural outcomes in mouse models of neuropathy. This has led us to explore how circadian rhythms might affect fluctuations in fatigue and pain in MS.Study Description: CircaMS was built by an interdisciplinary group of researchers and clinicians at Queen’s University in Kingston, ON. Our study aims to better understand how the symptoms experienced by people with MS can fluctuate daily, and why these fluctuations might be important for MS management. We are particularly interested in exploring the relationship between circadian rhythms (also known as our 24-hour sleep-wake cycle) and MS progression.Goal of the study: People with MS can experience daily fluctuations in their experience of fatigue and/or pain. How these are felt throughout the day may vary, and understanding these patterns of fluctuations may give us clues about why symptoms occur and how to better manage them.Time commitment: If you decide to participate, we ask that you complete:A baseline questionnaire (PART 1) on your condition, medical history, general health, and other symptoms. It should take you about 15 minutes to complete. A diary (PART 2) of your fatigue and other symptoms 3 times a day for at least 10 days using our online tool and your electronic device with internet access (smartphone, tablet or laptop). This should take about 1 minute per report (so about 3 minutes per day).To join the study click here or visit our website CircaMS websiteIf you have questions reach out to circams@ghasemloulab.ca

  • dickmanns2996@my.uwstout.edu for any questions. To fill out the survey, click here." c-nmssatomrichtext_nmssatomrichtext-host="">
    A graduate student from the University of Wisconsin-Stout is looking for participants who have been diagnosed with MS in the United States. Research is being conducted to look at the relationship between vitamin D intake among people with MS and disability status.The survey takes less than 10 minutes and consists of demographics, vitamin D intake, a food-frequency-questionnaire and a rating scale. The survey can be accessed from the link below and all answers are anonymous. Please reach out by email to dickmanns2996@my.uwstout.edu for any questions. To fill out the survey, click here.

  • 412-254-4883, or by email at msstudy2@pitt.edu." c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at the University of Pittsburgh are conducting a long-term, prospective, observational research study to understand what makes individuals with multiple sclerosis and related disorders differ from one another. Specifically, they aim to investigate the predictors of the individual differences in disease trajectory and treatment response using a wide range of biological, biometric, imaging, environmental, and clinical measurements. Understanding the factors that influence disease trajectory and treatment response will pave the way to realize precision medicine and deliver individualized care.Eligibility:
    • 7 years and older
    • Diagnosis of multiple sclerosis or related disorders
    Minimal Requirement:
    • Answering questionnaires online, by phone or in person
    • Allowing the review of medical records
    If you are interested in learning more, please contact the research coordinators by phone at 412-254-4883, or by email at msstudy2@pitt.edu.

  • iConquerMS." c-nmssatomrichtext_nmssatomrichtext-host="">
    REAL MS™ (Research Engagement About Life with Multiple Sclerosis) is a longitudinal, prospective study (that is, it will collect repeated observations of the same variables from now over a long period of time) of a cohort of people with MS (that is, it will study a group of individuals who share the characteristic of living with MS). It is designed to answer important questions about the heterogeneity of the experience of MS across the population of people who are living with the disease and about the factors that affect MS progression and treatment outcomes.The REAL MS study was initiated in August 2016 as the flagship research program of the iConquerMSTM patient-powered research network. The study will collect comprehensive data about demographics, overall health, quality of life, MS symptoms and treatments semi-annually via online questionnaires, and will from time to time invite its participants to reply to surveys on particular topics and/or to contribute biospecimens.Over the course of the study, REAL MS intends to enroll thousands of people living with MS who are as reflective of the MS population as possible. All adults 21 years of age or older who live with MS and register for iConquerMS™ are eligible to participate in the REAL MS study. Register for this study by joining iConquerMS.

  • 877-311-8971, emailMotherToBaby@ucsd.edu, or visit our website." c-nmssatomrichtext_nmssatomrichtext-host="">
    The MotherToBaby Mayzent® (siponimod) & Pregnancy Study is being conducted by the Organization of Teratology Information Specialists (OTIS) and coordinated by the University of California, San Diego.This study is observational, which means those who enroll will not be asked to take any medications or vaccines or change any part of their routine. Women who qualify for this study will not only have the opportunity to interact with our expert staff who can provide additional support during their pregnancy, but they will also play a key role in helping us learn more about MS during pregnancy for the benefit of both themselves and future pregnant patients.You may qualify for this study if you are currently pregnant and have been diagnosed with MS.To learn more about participation in this study, please call 877-311-8971, emailMotherToBaby@ucsd.edu, or visit our website.

  • 877-311-8971, emailMotherToBaby@ucsd.edu, or visit our website." c-nmssatomrichtext_nmssatomrichtext-host="">
    The MotherToBaby Kesimpta® (ofatumamab) & Pregnancy Study is being conducted by the Organization of Teratology Information Specialists (OTIS) and coordinated by the University of California, San Diego.This study is observational, which means those who enroll will not be asked to take any medications or vaccines or change any part of their routine. Women who qualify for this study will not only have the opportunity to interact with our expert staff who can provide additional support during their pregnancy, but they will also play a key role in helping us learn more about MS during pregnancy for the benefit of both themselves and future pregnant patients.You may qualify for this study if you are currently pregnant and have been diagnosed with MS.To learn more about participation in this study, please call 877-311-8971, emailMotherToBaby@ucsd.edu, or visit our website.

  • https://redcap.ucdenver.edu/surveys/?s=XWFCYRA88HMAJXRASpanish Survey: Planificación Familiar en la Esclerosis Múltiple: Encuesta de Pacientes https://redcap.ucdenver.edu/surveys/?s=CCRXTYHHPJKEXEL3For additional information, contact Cecilia Grimaldo at NeuroResearch@cuanschutz.edu" c-nmssatomrichtext_nmssatomrichtext-host="">
    Led by researchers at the University of Colorado, the goal of this survey is to learn more about how women with multiple sclerosis think about family planning and the conversations they have with their neurologists about this topic. Family planning is defined as putting resources (e.g., research, time, money, physical work, etc.) towards adding children to one’s family.Women between the ages of 18-50 who have been diagnosed with MS are eligible to take the short survey. To access the survey, click on one of the links below. English Survey: Family Planning in Multiple Sclerosis: Patient Survey https://redcap.ucdenver.edu/surveys/?s=XWFCYRA88HMAJXRASpanish Survey: Planificación Familiar en la Esclerosis Múltiple: Encuesta de Pacientes https://redcap.ucdenver.edu/surveys/?s=CCRXTYHHPJKEXEL3For additional information, contact Cecilia Grimaldo at NeuroResearch@cuanschutz.edu

  • https://khaspsychology.eu.qualtrics.com/jfe/form/SV_eEVH2lTJrxpLq7AFor any questions about the study, please email Ece Yılmaz Kozlu at ece.kozlu@stu.khas.edu.tr." c-nmssatomrichtext_nmssatomrichtext-host="">
    A research team at Kadir Has University in Turkey is conducting a study about mobile applications designed for MS management. Their goal of this research is to understand the value that these apps provide to people with MS so that future tools can be more relevant and effective. This is an international study taking place in Turkey, Germany, Serbia, Canada, the UK, Australia, and the USA.The researchers have developed a short 10-minute survey for people with MS. If you have ever used an app to manage your MS, you are invited to take the survey:https://khaspsychology.eu.qualtrics.com/jfe/form/SV_eEVH2lTJrxpLq7AFor any questions about the study, please email Ece Yılmaz Kozlu at ece.kozlu@stu.khas.edu.tr.

Studies About Multiple Sclerosis Symptoms or Rehabilitation

  • nshoae20@student.scad.eduSurvey Link: Start the Survey" c-nmssatomrichtext_nmssatomrichtext-host="">
    Study Title: AlphaRise: A Neurogame for MS-Related FatigueInvestigator: Ned Shoaei, MFA Candidate, Savannah College of Art and DesignPurpose: This survey is part of a larger study exploring how a closed-loop neurogaming system could help individuals with MS manage fatigue. The current goal is to gather insights on how people with MS experience fatigue in daily life, and what tools or strategies they currently use to manage it. Your responses—including answers to the Modified Fatigue Impact Scale (MFIS)—will help inform the design of a future EEG-based neurofeedback game.Eligibility: Adults diagnosed with MS.Participation: Complete a short online survey about your experience with fatigue.Confidentiality: All responses are anonymous and no identifying information is collected.Contact: Ned Shoaei at nshoae20@student.scad.eduSurvey Link: Start the Survey

  • hbpa@appstate.edu or (828)-262-7987." c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at Appalachian State University are interested in learning more about the physical activity experiences of individuals who participate in physical activity-based charity events dedicated to finding a cure for MS. This online, survey-based, longitudinal study will examine the relationships between physical activity participation, physical health, cognitive functioning, social connection, and quality of life in individuals who plan to participate in a physical activity-based MS charity event. Our goal is to better understand the facilitators, barriers, and outcomes associated with physical activity participation so that long-term physical activity programs can be developed that better meet this population’s needs.If you are at least 18 years of age, English speaking, have access to a technology device (computer, tablet, or smartphone), are diagnosed with MS or have close ties to someone diagnosed with MS (family member or close friend), and have plans to participate in a physical activity-based MS charity event within the next 12-months you may be eligible to participate. If you choose to participate in this study, you will be asked to complete monthly surveys sent electronically once a month for 12-months.To learn more about participating in this study, please contact us at hbpa@appstate.edu or (828)-262-7987.

  • https://www.redcap.ihrp.uic.edu/surveys/?s=HXWYJETJRWKCTPLCPlease contact Louise Declerck, PT, PhD, at enrl@uic.edu with any questions. " c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at the University of Illinois at Chicago are conducting a fully remote study involving the completion of one online survey. The study aims to better understand the views and opinions of exercise training among people with multiple sclerosis (MS). Participating in this study only takes about 10-15 minutes in total. Individuals who are aged 18 years old or above, currently reside in the United States, and have been diagnosed with MS, are invited to participate by clicking (or copy-pasting) the following link: https://www.redcap.ihrp.uic.edu/surveys/?s=HXWYJETJRWKCTPLCPlease contact Louise Declerck, PT, PhD, at enrl@uic.edu with any questions.

  • Fill out this survey.Participant reimbursement: Your participation in both the surveys and the interview will be reimbursed with a gift card.If you have any questions, please email Emily Gard at emily.gard@rm.edu, or call 360-941-0766." c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at Rocky Mountain University of Health Professions are currently recruiting young people with MS (ages 10-18) to participate in interviews about their experiences with exercise, and their perspectives of how MS has impacted their lives. The study will be completely online and will involve filling out an online survey (via Google survey) and participating in an interview (via zoom).Purpose: The purpose of this study is to gain a greater understanding of the exercise barriers and quality of life limitations in children and adolescents with MS. Gaining a greater understanding of exercise barriers and quality of life limitations for these individuals will allow health care professionals to more effectively address the unique needs of children and adolescents with MS.Time commitment: In total, the time commitment will only be about 45-60 min. The screening survey from the flyer should take less than 5 min, the demographic survey will take up to 10-15 min, and the interview will last up to 30-45 min. Fill out this survey.Participant reimbursement: Your participation in both the surveys and the interview will be reimbursed with a gift card.If you have any questions, please email Emily Gard at emily.gard@rm.edu, or call 360-941-0766.

  • Fill out the survey.If you have any questions, please email the principal researcher Associate Professor Litza Kiropoulos at litzak@unimelb.edu.auor email research staff working on this project at Anxiety-Illness@unimelb.edu.au." c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at the University of Melbourne are interested in identifying psychological factors that contribute to the development and maintenance of anxiety in individuals with MS. They would like to use this information to help improve psychological treatments of anxiety in those with MS. Participation is voluntary and all data will remain confidential.Participation involves filling out an online questionnaire at three time points, taking about 30 minutes initially, followed by a shorter 15-minute survey, and another 30-minute questionnaire six months later. It's all done on a phone or computer. The online questionnaire includes questions of a personal nature about your mental health and physical health.Participants will be entered into a raffle for a chance to win gift cards.Eligibility:
    • A diagnosis of MS.
    • Aged 18 years or older.
    Fill out the survey.If you have any questions, please email the principal researcher Associate Professor Litza Kiropoulos at litzak@unimelb.edu.auor email research staff working on this project at Anxiety-Illness@unimelb.edu.au.

  • PT-LangLab@email.wustl.edu or complete the secure online interest survey." c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at Washington University School of Medicine are looking for participants who have been diagnosed with MS and are referred to physical or occupational therapy to address problems with arm and/or hand function.People with MS may qualify if they:
    • Have sensory or motor problems with one or both arms or hands
    • Have a referral to physical or occupational therapy to address the problems in their arm(s) or hand(s)
    Participants will be enrolled for 3 months, with enrollment starting around the time their physical or occupational therapy starts. At the time of enrollment and at 2 times thereafter, participants will complete questionnaires and wear movement sensors (like large wrist watches) on each arm. The study can be done fully remotely, since the questionnaires can be completed online and the sensors can be mailed to participant homes.Participants will be compensated for their time and effort. If interested, please email us at PT-LangLab@email.wustl.edu or complete the secure online interest survey.

  • james.sumowski@mssm.edu and our research coordinator Emily Dvorak at emily.dvorak@mssm.edu." c-nmssatomrichtext_nmssatomrichtext-host="">
    Dr. Katz Sand and Dr. Sumowski at the Corinne Goldsmith Dickinson Center for MS at Mount Sinai Hospital are looking to recruit persons without MS as control participants for a research study on diet and cognition.Friends and family members of persons with MS would be ideal control participants, but any adult aged 18 to 85 without MS can participate. Please feel free to forward this information to anyone you think might be interested in participating. The study involves 20 to 30 minutes of electronic questionnaires (e.g., diet survey) and then 45 to 60 minutes of cognitive tasks over Zoom (e.g., memory tests).Anyone interested in participating as a control subject for this study should email Dr. Sumowski at james.sumowski@mssm.edu and our research coordinator Emily Dvorak at emily.dvorak@mssm.edu.

  • User Survey For New Fall Prevention MethodPlease contact Nowf (Nina) Alfallaj at nalfal2@uic.edu if you have trouble accessing the survey, or for any further explanation.The study is under the supervision of Dr. Tanvi Bhatt." c-nmssatomrichtext_nmssatomrichtext-host="">
    The University of Illinois at Chicago, Physical Therapy department is conducting a survey study. The survey is about the user perspective of a new fall prevention method "perturbation-based balance assessment and treatment." There are several devices to induce the perturbation. The online survey aims to explore the user knowledge and perspective of these devices.The researchers are recruiting 4 populations:
    • Healthy older adults (60 and above)
    • People with neurological disorder 18-90 (such as MS, Parkinson’s, stroke)
    • People who perceive themselves at risk of fall
    • People who have been diagnosed with any balance disorders
    If you are in the Chicagoland area, you will be given the opportunity to come to the lab and try out the available devices. At the end of the online survey there is a space for your contact information if you choose to visit our lab. If you choose so, you will be contacted for further details. Also, upon your visit, you will be compensated.The survey link: User Survey For New Fall Prevention MethodPlease contact Nowf (Nina) Alfallaj at nalfal2@uic.edu if you have trouble accessing the survey, or for any further explanation.The study is under the supervision of Dr. Tanvi Bhatt.

  • visit our website.For questions or concerns, please email elevateMS@sagebase.org or call toll-free 844-822-4707 or 206-667-2103." c-nmssatomrichtext_nmssatomrichtext-host="">
    elevateMS is an iPhone app-based study designed to monitor and understand the variations in symptoms of multiple sclerosis. Living with MS disease means coping with symptoms that may change daily. Yet these daily changes may not be tracked frequently enough. The elevateMS app will use questionnaires and sensor data from your phone, to help you track your condition 24/7, allowing you to review trends and share this information with researchers. elevateMS is run by Sage Bionetworks, a nonprofit research organization in collaboration with Novartis Pharmaceuticals Corporation.Key features:
    • Innovative activity-based measurements of MS symptoms that include walking a few steps and finger tapping
    • 10 minutes/week commitment
    • Share insights with researchers
    • Get educated about symptom variations
    Researchers are looking for participants who meet the following criteria:
    • 18 or older
    • U.S. resident
    • Have a personal iPhone (iPhone 4S or newer). The app requires iOS 8.0 or later and is compatible with iPhone and iPod touch.
    For further information on this study, please visit our website.For questions or concerns, please email elevateMS@sagebase.org or call toll-free 844-822-4707 or 206-667-2103.

  • research@auralanalytics.com." c-nmssatomrichtext_nmssatomrichtext-host="">
    Aural Analytics is a medical device company that is developing a mobile application that records and assesses a person’s voice while performing a series of tasks and provides objective measures of speech in order to help with treatment, management, and hopefully in the future, early diagnosis of MS.Our research study is looking for people with MS or other motor speech disorders that would be willing to meet with a Speech Language Pathologist for a 30-60 minute teleconference. During this teleconference, the individual will complete a series of tasks while recording their speech on our mobile application.Researchers are looking for participants who meet the following criteria:
    • 18 or older
    • U.S. resident
    • Speaks English as a first language.
    • Has access to 2 internet-connected devices, at least one being a mobile device (smartphone, tablet, etc). Patients will participate in the teleconference on one device and provide speech samples on the mobile device.
    • Has self-reported speech impairment due to dysarthria
    If you would like to participate in our study or have further questions or concerns, please email research@auralanalytics.com.

  • 225-412–0813 or LMIL149@lsu.edu if you are interested.Results from this study are designed to help rehab professionals improve patient care including the management of long-term cognitive impairment." c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at Louisiana State University are conducting a research study to get your opinions about the thinking strategies (e.g., lists, planners, organizational tools) recommended by your rehab team. For example, they are interested whether these strategies are helpful for managing cognitive difficulties (e.g., memory, attention, slowed speed) and how often you are using them.Individuals may be eligible if they meet ALL criteria below:
    • Have multiple sclerosis or any other neurological condition not present at birth
    • Received strategies from rehab therapists in the last year to manage cognitive impairment (e.g., lists, planners, organizational tools)
    • Can provide a copy of these strategies
    • Are at least 18 years old
    Participation includes two phone calls, each lasting 15–20 minutes, with a research team member. During these calls, you'll answer questions on a computer, tablet, or smartphone. Compensation is provided for completing both calls.Please contact Luke Miller at 225-412–0813 or LMIL149@lsu.edu if you are interested.Results from this study are designed to help rehab professionals improve patient care including the management of long-term cognitive impairment.

Quality of Life Research for People Living With MS

  • https://youtu.be/D3LFms7vyuo or you can the information sheet and sign up here: https://app.onlinesurveys.jisc.ac.uk/s/reading/screening-questionnaire" c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at University of Reading in the UK are running an exciting new study called MS PSY WELL-P, a peer-led online program designed to explore how a short course can boost psychological well-being for people with MS. The course is free, flexible, and built to support mental health in everyday life. If you’d like to take part and help shape the future of MS care, please heck out this short intro video here to find out more: https://youtu.be/D3LFms7vyuo or you can the information sheet and sign up here: https://app.onlinesurveys.jisc.ac.uk/s/reading/screening-questionnaire

  • Click here for the surveyIf you have any questions about participating, please email the researcher, Professor Malachy Bishop at mlbishop4@wisc.edu." c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at the University of Wisconsin-Madison invite you to participate in a research study.In this study we are identifying the career resources and information needs of adults working with MS so that we can understand these needs and how different people, with different experiences, might need different career resources and information at different times.The researchers will use this information to help develop career decision resources, helping people with MS to make informed career decisions and get needed support.If you choose to participate, you will fill out a survey that will take about 20 minutes to complete. The survey asks questions about your employment status, health, and employment situation needs. Participation is voluntary and all data will remain anonymous.To be eligible for the study, you must:
    • Have adiagnosis of MS
    • Be 18 years or older
    • Be currently employed OR employed within the last 3 years
    Click here for the surveyIf you have any questions about participating, please email the researcher, Professor Malachy Bishop at mlbishop4@wisc.edu.

  • Click here for the surveyIf you have any questions, please contact Amara Miller at amaramiller@arizona.edu." c-nmssatomrichtext_nmssatomrichtext-host="">
    Children diagnosed with demyelinating diseases such as multiple sclerosis (MS), NMOSD, and MOGAD often face complex health challenges, and growing research suggests that early life stressors—known as Adverse Childhood Experiences (ACEs)—may influence their disease course and overall well-being. Despite this, the connection between ACEs and pediatric demyelinating diseases remains understudied.Researchers at the University of Arizona College of Medicine – Phoenix and UC Davis are conducting a national study to explore how childhood trauma, family adversity, and social factors may impact individuals diagnosed before age 18. This anonymous survey is open to adults (18+) diagnosed in childhood and to parents or guardians of affected children. The survey takes approximately 20 minutes to complete. Please note that some questions may address sensitive or distressing topics related to early life experiences. Participants are encouraged to skip any questions they are uncomfortable with and can stop the survey at any time. Support resources are provided within the survey.Click here for the surveyIf you have any questions, please contact Amara Miller at amaramiller@arizona.edu.

  • Click here for the surveyIf you have any questions, please email the researcher, Professor Malachy Bishop, at mlbishop4@wisc.edu." c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at the University of Wisconsin-Madison are conducting a survey. They are studying self-management in MS and evaluating an updated tool for adults with MS, to be used to help understand the different ways people with MS take control of their health and how this affects health and function. They hope to use this information to help improve MS healthcare, research, and health self-management.If you choose to participate, you will fill out an online survey that will take about 20 minutes to complete. The survey asks questions about your health management, demographic information (e.g., age, income), your MS, and your health and function. All data will remain confidential.To be eligible for participation, you must:
    • Have a diagnosis of MS
    • Be 18 years or older
    Click here for the surveyIf you have any questions, please email the researcher, Professor Malachy Bishop, at mlbishop4@wisc.edu.

  • zxu434@gatech.edu or evie.mitchell@gatech.edu." c-nmssatomrichtext_nmssatomrichtext-host="">
    A team of Georgia Tech students are seeking individuals with MS and fine motor skill issues to participate in a remote Zoom interview. The primary goal of the study is to understand challenges faced by individuals with fine motor skill disabilities in the context of education in order to design better adaptive technology. Interviews will last 60 minutes, entirely remote, over Zoom video or audio calls, and you may withdraw from the interview at any time for any reason. Your presence and active participation would greatly enrich our abilities as design students to make more inclusive products that help us work toward a more equitable future.If interested, please email zxu434@gatech.edu or evie.mitchell@gatech.edu.

  • 205-975-2882." c-nmssatomrichtext_nmssatomrichtext-host="">
    Researchers at the University of Alabama at Birmingham (UAB) are interested in learning the effect of expressive emotional writing on emotional well-being and activity participation in adults living multiple sclerosis.Inclusion criteria:
    • Community-dwelling adults (aged 18 years or older)
    • A confirmed diagnosis of multiple sclerosis
    • Able to communicate verbally or through writing in English
    • Access to a computer or smartphone and home internet
    Participants will engage in (10) 60-minute weekly online expressive emotional writing sessions via Zoom and completion of questionnaires along with an exit interview.If you are interested or want to know more, please contact Jessica Hawkins at 205-975-2882.

  • 301-761-5333 for more information, or email ndsclinicialgroup@mail.nih.gov." c-nmssatomrichtext_nmssatomrichtext-host="">
    National Institutes of Health researchers are looking for people with advanced MS to study if genes cause loss of neurological functions.People with multiple sclerosis may qualify if they:
    • Use a cane and are younger than 36 years (female) or 31 years (male)
    • Use two canes or a walker and are younger than 38 years (female) or 33 years (male)
    • Can't walk and are younger than 39 years (female) or 34 years (male)
    Participants will be studied at their home. They will need to share with the researchers their medical records and brain MRI images. Researchers will examine participants’ neurological functions by simple smartphone tests that take 30-60 minutes (smartphone will be provided). Participants will collect —with minimal discomfort — cells from inside of their mouth using a brush and a small amount of blood from their arm using a device that attaches to their skin. The researchers will analyze genes and proteins from these samples to determine if changes in genes and proteins affect MS progression.Participants will be compensated for their time and effort.If interested, call 301-761-5333 for more information, or email ndsclinicialgroup@mail.nih.gov.

  • Click here to participatePlease email realms@uic.edu with any questions." c-nmssatomrichtext_nmssatomrichtext-host="">
    The Race, Ethnicity, and Active Lifestyle in MS (or REAL MS) Study is a remote, online study that aims to understand physical and cognitive function differences in MS across racial and ethnic groups. We're seeking adults with MS to participate in a 20–30-minute Zoom session and to complete online surveys asking about health history, symptoms, physical and mental health, and diet at home. Participants receive compensation for completing the assessment and surveys.Click here to participatePlease email realms@uic.edu with any questions.