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Studying Patients’ Experiences With MS

Two women walk down a hospital hallway in conversation. One is a doctor, wearing a white coat.
Kresence (right), diagnosed in 2016

Qualitative Vs. Quantitative

What We Learned

Where To Go Next

Now that this study has gathered patient perspectives, what happens next? Talente says there is a lot of potential. “I think the great thing about this paper is that there's a wide array of audiences that could benefit from it, because this is not information that's highly talked about or highly discussed,” she says.Healthcare providers and researchers can use these findings to inform their work. The paper provides some specific analysis and recommendations for these groups, including:
  • The survey results highlight how important it is for doctors and insurers to connect patients with resources for support.
  • Researchers can develop more precise models by understanding patients’ real-world experiences, as trials often overlook the difficulties and priorities that patients reported in this survey.
  • These results emphasize that financial or economic effects are a significant factor, which should consistently be addressed in MS-related studies.
Beyond this, Talente says she hopes patients can look at these results and see themselves. “Every person with MS has an individualized experience, but it can be helpful to see yourself in a larger paper like this…My hope is that everyone feels comfortable and confident in advocating for what they need with their healthcare provider.”
Maddie Buckley
Maddie Buckley is a Senior Specialist at the National MS Society who is based in Pittsburgh, Pennsylvania.

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