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pediatric multiple sclerosis eventually have to transition into adult healthcare. The timing of this change will look different for different people, but it’s never too early to start thinking about it. What To Know About the Healthcare Transition The transition can be long. It is not the same with every provider. Some consider the age of the patient. Others look at things like disease progression. The transition will involve either:Transferring to a new provider with a background in treating adults with MS. Staying with the same provider but in a more adult-focused setting. The transition should be a group effort, including the young person living with MS, their parent(s) or guardian(s)and both pediatric and adult providers. Things To Do Schedule a time for the young person with MS and their neurologist to meet one on one. Trust and open communication between a doctor and patient are extremely important. This meeting also allows the young person to discuss topics they might not want to address in front of a parent or guardian.Decide who will be making decisions. Young people should be engaged in decision-making about their care based on their age, developmental stage and interest. If they are ready to step into this role, they should be an active participant on their care teams prior to the transition. If they are not, decide who will be legally responsible for medical decision-making after they turn 18.Get copies of key paperwork and images. Make sure the processes are clear. Know: Where to get medication How to access insurance benefits How care will be paid for Identify sources of support if needed. This could include social workers, case managers and even financial advisors.Talk through potential challenges such as:Lapses or changes in insurance When to see a doctor in the emergency department (versus the primary provider) and what it will cost Transportation to and from medical appointments Obtaining medical equipment if needed Additional Resources Contributors: Aaron Abrams, MD, Cleveland Clinic; Yolanda Wheeler, PhD, CRNP, CPNP-AC, MSCN, University of Alabama at Birmingham " c-nmssatomrichtext_nmssatomrichtext-host="">Young people living with pediatric multiple sclerosis eventually have to transition into adult healthcare. The timing of this change will look different for different people, but it’s never too early to start thinking about it. What To Know About the Healthcare Transition The transition can be long. It is not the same with every provider. Some consider the age of the patient. Others look at things like disease progression. The transition will involve either:Transferring to a new provider with a background in treating adults with MS. Staying with the same provider but in a more adult-focused setting. The transition should be a group effort, including the young person living with MS, their parent(s) or guardian(s)and both pediatric and adult providers. Things To Do Schedule a time for the young person with MS and their neurologist to meet one on one. Trust and open communication between a doctor and patient are extremely important. This meeting also allows the young person to discuss topics they might not want to address in front of a parent or guardian.Decide who will be making decisions. Young people should be engaged in decision-making about their care based on their age, developmental stage and interest. If they are ready to step into this role, they should be an active participant on their care teams prior to the transition. If they are not, decide who will be legally responsible for medical decision-making after they turn 18.Get copies of key paperwork and images. Make sure the processes are clear. Know: Where to get medication How to access insurance benefits How care will be paid for Identify sources of support if needed. This could include social workers, case managers and even financial advisors.Talk through potential challenges such as:Lapses or changes in insurance When to see a doctor in the emergency department (versus the primary provider) and what it will cost Transportation to and from medical appointments Obtaining medical equipment if needed Additional Resources Contributors: Aaron Abrams, MD, Cleveland Clinic; Yolanda Wheeler, PhD, CRNP, CPNP-AC, MSCN, University of Alabama at Birmingham pediatric multiple sclerosis eventually have to transition into adult healthcare. The timing of this change will look different for different people, but it’s never too early to start thinking about it. What To Know About the Healthcare Transition The transition can be long. It is not the same with every provider. Some consider the age of the patient. Others look at things like disease progression. The transition will involve either:Transferring to a new provider with a background in treating adults with MS. Staying with the same provider but in a more adult-focused setting. The transition should be a group effort, including the young person living with MS, their parent(s) or guardian(s)and both pediatric and adult providers. Things To Do Schedule a time for the young person with MS and their neurologist to meet one on one. Trust and open communication between a doctor and patient are extremely important. This meeting also allows the young person to discuss topics they might not want to address in front of a parent or guardian.Decide who will be making decisions. Young people should be engaged in decision-making about their care based on their age, developmental stage and interest. If they are ready to step into this role, they should be an active participant on their care teams prior to the transition. If they are not, decide who will be legally responsible for medical decision-making after they turn 18.Get copies of key paperwork and images. Make sure the processes are clear. Know: Where to get medication How to access insurance benefits How care will be paid for Identify sources of support if needed. This could include social workers, case managers and even financial advisors.Talk through potential challenges such as:Lapses or changes in insurance When to see a doctor in the emergency department (versus the primary provider) and what it will cost Transportation to and from medical appointments Obtaining medical equipment if needed Additional Resources Contributors: Aaron Abrams, MD, Cleveland Clinic; Yolanda Wheeler, PhD, CRNP, CPNP-AC, MSCN, University of Alabama at Birmingham " c-nmssatomrichtext_nmssatomrichtext-host="">Young people living with pediatric multiple sclerosis eventually have to transition into adult healthcare. The timing of this change will look different for different people, but it’s never too early to start thinking about it. What To Know About the Healthcare Transition The transition can be long. It is not the same with every provider. Some consider the age of the patient. Others look at things like disease progression. The transition will involve either:Transferring to a new provider with a background in treating adults with MS. Staying with the same provider but in a more adult-focused setting. The transition should be a group effort, including the young person living with MS, their parent(s) or guardian(s)and both pediatric and adult providers. Things To Do Schedule a time for the young person with MS and their neurologist to meet one on one. Trust and open communication between a doctor and patient are extremely important. This meeting also allows the young person to discuss topics they might not want to address in front of a parent or guardian.Decide who will be making decisions. Young people should be engaged in decision-making about their care based on their age, developmental stage and interest. If they are ready to step into this role, they should be an active participant on their care teams prior to the transition. If they are not, decide who will be legally responsible for medical decision-making after they turn 18.Get copies of key paperwork and images. Make sure the processes are clear. Know: Where to get medication How to access insurance benefits How care will be paid for Identify sources of support if needed. This could include social workers, case managers and even financial advisors.Talk through potential challenges such as:Lapses or changes in insurance When to see a doctor in the emergency department (versus the primary provider) and what it will cost Transportation to and from medical appointments Obtaining medical equipment if needed Additional Resources Contributors: Aaron Abrams, MD, Cleveland Clinic; Yolanda Wheeler, PhD, CRNP, CPNP-AC, MSCN, University of Alabama at Birmingham
Transitioning Pediatric to Adult Care
