Pediatric Multiple Sclerosis
Multiple Sclerosis in Children and Teens
If you’re a child or teen who just heard that you have multiple sclerosis, or the parent of a child who was recently diagnosed with the disease, you probably have a lot of questions.Let’s quickly answer some of the most common ones:
- Is pediatric MS fatal? No.
- Is there a cure? Not yet, but we’re working on it!
- Did I do something to cause this? No.
- Is MS contagious? No.
- Are my siblings (or my other kids) going to get MS? Probably not.
- Can I continue to be active? Absolutely.
- Will I need a wheelchair? Probably not.
- Can I continue to go to school? Yes.
Number of Children and Teens With MS
Pediatric MS refers to cases of MS occurring in people under age 18. Fewer than 5,000 children and teens live with MS in the United States and fewer than 10,000 in the world. MS can occur at any age, but pediatric MS is relatively rare.
Pediatric MS Symptoms
The symptoms of MS in children and teens are mostly similar to those in adults. However, children with MS:- Only have a relapsing-remitting course, with clear attacks (relapses) of symptoms that then go away (remit)
- Have frequent relapses (possibly more than typically seen in adults)
- Recover well and more quickly from relapses than adults, according to studies
Multiple Sclerosis Age of Onset
Multiple studies have shown that MS rarely starts before the age of 16. Only 3%-5% of all people living with MS were diagnosed before age 16. Most MS diagnoses occur between the ages of 20 and 40.Diagnosing MS in Children
As with adult MS, no single symptom, physical finding or laboratory test can determine if you or your child has MS. Doctors use several strategies to diagnose MS:- Finding evidence of damage in at least 2 separate areas of the central nervous system (CNS), which includes the brain, spinal cord and optic nerves, AND
- Finding evidence that the damage occurred at different points in time AND
- Ruling out all other possible diagnoses.
Life for Kids With MS
If you or your child is living with MS, it is important to prioritize healthy behaviors, including:- Eating nutritious foods
- Getting regular exercise
- Keeping up with preventive care
- Managing other medical conditions
- Not vaping or smoking (for teenagers)
Treatment for Pediatric MS
The treatment of MS in children and teens, as well as adults, involves several strategies:- Modifying the course of the disease
- Managing relapses
- Maximizing lifestyle interventions
- Managing symptoms
Healthcare Providers for Pediatric MS
Finding a pediatric neurologist is critical for the care of children and teens with MS and related disorders. Using your zip code, you can search our directory for pediatric neurologists. Simply select “Healthcare Providers” as the category and “Pediatric Neurologist” for the support type. You can also contact an MS Navigator to find pediatric providers across the country.When a person with pediatric MS becomes an adult, their care will often transition from a pediatric MS provider to an adult MS provider. Questions or needs related to this transition will be different for everyone. Consider connecting to the Child Neurology Foundation Transition Care Program to make sure the transition is successful.